A Jeannette couple always imagined their 2-year-old son Logan would be in their wedding photos.
But when it became clear that a rare genetic disorder would likely mean that Logan wouldn't live to see their wedding day -- originally planned for next year -- Sean Stevenson and his fiancee Christine Swidorsky decided to reschedule their wedding for Saturday and include their son as the best man.
"We just said, 'You know what? We're going to do it,' " Mr. Stevenson, a 27-year-old truck driver, said.
"Ever since he was a boy, he's been battling to live," Mr. Stevenson added, noting the family has been through numerous hospitalizations, spinal taps and ventilators.
Logan was born with Fanconi anemia, a disorder that often leads to cancer.
He was diagnosed with leukemia early in his life but was cancer free for nine months.
"He was always fighting -- everyone was always praying for him," Mr. Stevenson said.
That gave them hope, but something seemed off, and last Friday doctors told Ms. Swidorsky they found a mass on Logan's kidney.
"They said there is nothing else they can do," Mr. Stevenson said.
He said his son is a smart kid, if only because whenever Mr. Stevenson joked with Logan's mother, Logan always seemed to be in on it, laughing in the background.
The family appealed to the Make-A-Wish Foundation, with the hope of spending a last vacation with their son at Disney World in Florida.
Their request was granted, but the vacation in June was cut abruptly short "and turned into a nightmare," Mr. Stevenson said.
Logan was rushed to the hospital and ultimately was flown on a medical jet back to Children's Hospital of Pittsburgh of UPMC.
Ever since they decided to include their son as the best man in their wedding, Logan's story has attracted local and national media attention.
Mr. Stevenson said his fiancee has gotten hundreds of new friend requests on Facebook and news outlets ranging from CNN to NBC's "Today Show" have reached out to their family.
And they have only one message to the parents who wind up becoming familiar with their family's situation: "Cherish the moments you have with your children and love them as much as you can," Mr. Stevenson said. "I'm not counting the days, I'm just cherishing the moments we have."
Alex Zimmerman: firstname.lastname@example.org, 412-263-3909 or Twitter @AGZimmerman First Published August 2, 2013 4:30 AM