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Goodfellows Toy Fund: Mom faces children's illnesses with resolve
Tuesday, December 20, 2005

Annie O'Neill, Post-Gazette
Chrystal Harris with sons Khristian, 4, Kenneth, 14.
Click photo for larger image.

Goodfellows Toy Fund
Since 1947, the Goodfellows Toy Fund has helped provide Christmas cheer for children in disadvantaged and struggling families. Contributions from generous Post-Gazette readers will help ensure that every boy and girl receives a toy this holiday season. Every contribution, large and small, is acknowledged in the newspaper. You can make a tax-deductible donation using the coupon that accompanies this story, or make a donation online.
Five years ago, life was not treating Chrystal Harris well, and she was returning the favor. A successful career in modeling had dissolved in drug abuse and other bad decisions.

She was going to drug treatment and trying to stop the downward spiral when things got a whole lot worse.

Her 9-year-old son Kenneth, a normal, baseball-playing kid, began to disintegrate. Eventually diagnosed with Guillain-Barre Syndrome, which attacks the nervous system, he went blind within five days, lost the use of his limbs and nearly died. He spent more than four months in intensive care at Children's Hospital, followed by five months in rehabilitation at The Children's Institute.

By the time Kenneth's sight returned and he was released to live at home, Ms. Harris had learned how to maneuver him in a wheelchair and lift him one leg at a time up the steps to her third-floor apartment. Less than two weeks into this new routine, Ms. Harris was straining with Kenneth on the stairs when she went into premature labor.

Second son Khristian arrived early and weighed a mere 2 pounds, 2 ounces. His lungs were underdeveloped. He spent four months in intensive care, followed by some 30 operations, mostly to keep open the breathing hole in his neck. He still cannot speak but understands just about everything and relies on sign language to communicate.

With her single mom's life suddenly consumed by the needs of her boys, Ms. Harris' daughter Kendra, now 6, "got lost," Ms. Harris said. Kendra felt ignored and starting acting out. She lives with her dad now, while mother and daughter work to rebuild their relationship.

As a result of this cascade of troubles for her children, Ms. Harris' full-time job this holiday season is simply taking care of them. And all of her "paychecks" -- in the form of child support and supplemental income and disability payments from Social Security -- go to their needs, with precious little remaining for toys or treats.

A typical day for Ms. Harris begins at 5:30 when she wakes, brews coffee, takes a shower, gets the boys up, makes them breakfast and helps them get ready for school. Both wear braces on their legs, and Khristian's breathing bag, oxygen tank and other equipment must be checked and prepped.

Kenneth walks to Wilkinsburg Middle School around 7 a.m. as the ACCESS van comes to pick up Khristian and take him to Child's Way in East Liberty, which provides day care for medically fragile children.

Ms. Harris rides with Khristian to and from Child's Way because his breathing apparatus needs constant attention. She usually walks the 3.7-mile return trips in the morning and afternoon because she has a seizure disorder and cannot drive.

This leaves just a few hours most days for buying food, paying bills and doing all of the other day-to-day tasks that any family must perform, plus ordering medical supplies, juggling appointments and doing paperwork for the nine doctors and therapists involved in her children's regular treatments, and arranging for appropriate play or after-school activities.

Then there's the cleaning. A lot of cleaning.

Khristian is highly susceptible to infection due to his tracheotomy and his compromised immune system. So his room and the bathroom and all of his ventilation machinery must be checked and cleaned every day.

Khristian just got over a scary three-week bout of fever and pneumonia, which kept Ms. Harris or her older son constantly at his side to monitor his temperature and his breathing and to suction his tracheotomy so that it wouldn't clog.

Just as Khristian got better at the beginning of this week, Kenneth's temperature spiked. He's now being treated for an ear infection, a relatively regular occurrence for many children but a cause for alarm for a boy who fears that any sickness could bring another meltdown like the one he experienced five years ago.

All told, Ms. Harris figures her family's medical bills have mounted to nearly $6 million over the past five years, most of it paid through UPMC insurance arranged through the state. Her co-pays add up, though, and she spends a lot of time making sure her kids get all the medical attention they need.

One silver lining for Ms. Harris is that she's learning sign language and hopes that she might make a new career of being an interpreter.

And the drug habit is long gone. There's no time and no money. And her kids need her too much.

They also could use some cheering up. The Pittsburgh Post-Gazette Goodfellows Toy Fund seeks to ensure that every child has a toy under the tree on Christmas morning.

Donations support the Marine Corps Toys for Tots program, which will distribute more than 100,000 toys to needy children this holiday season.

Please help. Make a tax-deductible donation to Goodfellows by using the coupon on this page, or make a donation online by visiting www.post-gazette.com/pgcharities.

Every donation will be acknowledged in the newspaper.

Goodfellows Toy Fund

Today's total: $7,280.99
Grand total: $126,255.02


The Evanko family.....$1,000

In memory of S. L. Clark.....$600

Mary Anne Murphy.....$500

D. Dulis.....$300

Michael Ruefle.....$250

In memory of Alex and Sara Dempster.....$250

Sam Yahres.....$250

Anonymous.....$200

Paul V. Dufour.....$200

Dave and Sandy Roessler.....$150

M. Sue Fisher.....$100

Gautam and Prachi Patel.....$100

Gerald Bartolomucci.....$100

Anonymous.....$100

Rosedale Technical Institute -- Diesel Dept......$100

Maren and Megan McGrane.....$100

In honor of Nikki, Terry, Brandon, Jessica, Adam, Allison and Mark.....$100

In memory of Dorothy Hart (Bill and Ruth Goode).....$100

In memory of Henry and Esther Gunzelman.....$100

In memory of Jack and Gloria Lewis.....$100

In memory of Thomas and Margaret O'Connor.....$75

In honor of Marjorie Rogers -- From Lisa and Randy King.....$75

David Wohlwill.....$75

In honor of Tucker Yasko.....$65

Emma Lou Morocco.....$50

Susannah Glick.....$50

In memory of Mr. and Mrs. August Bondi.....$50

Anonymous.....$50

Anonymous.....$50

Sandra Gooderham.....$50

In memory of Ronnie Schroeder from his wife, Peggy.....$50

Hurka family.....$50

K. Charlton.....$50

Dave and Kim Hillenbrand.....$50

Rich Gasperini.....$50

For the kids.....$50

David M. Spera.....$50

Anonymous.....$50

Anonymous.....$50

Anonymous.....$50

Pay Day Quick Loans.....$50

Carol Robinson.....$50

Claire and Annie Garvey.....$50

Carol F. Dominicis.....$50

Arlene Ferrante.....$50

Ken and Marilyn Davis.....$50

Jason Jerome.....$50

In memory of Darius M. Voyter and Jim Ashmore.....$40

Anonymous.....$40

Thomas P. and Donna L. Zolkiewicz.....$35.99

In memory of John Gehrlein.....$35

Nick, Alex, Dean and Andrew Sherman.....$30

Mark S. Carano.....$30

Paul Lopato.....$25

Audrey Bonawitz.....$25

Don and Bev Gibson.....$25

Rene Laventure.....$25

Sandy Barnett.....$25

John A. Sacco.....$25

Gluntz family.....$25

Anonymous.....$25

Anonymous.....$25

Alan Medvid.....$25

Perry Highway Post 161 American Legion.....$25

Hubbell.....$25

Kara and Lindsay Boyle.....$25

In memory of Richard Crissman.....$25

Joe Bartunek.....$25

Ray Baldridge.....$25

In memory of De De.....$25

Tony and Connie Gammiere.....$25

Kurt and Amy Meinert.....$25

In memory of Anne Coughlin.....$25

Barbara Peace.....$25

Gregory Paul Mincin Jr......$25

Gerry and Mary Ellen Goga.....$25

Kathleen Suvak.....$25

Jim, Cheryl and Sydney Vlasach.....$25

Charles McWilliams.....$20

Ralph and Cindy Pugliano.....$20

Erin, Hegan, Nana and Pappy.....$20

Donna Gebhard.....$20

David L. Rupinsky.....$20

Kelsey and Lindsay Speelman.....$20

The Donovan family.....$20

In memory of Mark Ricci and "Jamm".....$20

M. J. Katrincsak.....$15

Ed Kims.....$15

Anita O'Leary.....$15

Maura and Maureen Atkinson.....$15

Sandra Pawlyk.....$10

Bob Boscia.....$10

Ellen M. Flatley.....$10

In memory of Louis F. Manning.....$10

Anonymous.....$10

Sylvia L. Cooks.....$10

Ray and Robin Snow.....$10

A friend.....$10

"Sheri".....$5

First published on December 20, 2005 at 12:00 am
Greg Victor can be reached at gvictor@post-gazette.com or 412 263-1570.
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